The American Heart Association recently published ethical and practical guidelines on reporting genetic research results (2010). One of the task groups’ main findings was that researchers need to have more engagement with the community – how exciting! Specifically, they urged investigators to “engage the broader community when dealing with identifiable communities to advise them on the return of aggregate and individual research results.” We, the CEC (Community Ethics Committee), are a voice for the diverse, Boston communities and we provide feedback to Harvard’s teaching hospitals on issues very similar to this. It’s great to hear that one of the US’s top medical associations is seeking to collaborate in similar ways.
The report can be found in the journal, “Circulation: Cardiovascular Genetics” and is posted here:
http://circgenetics.ahajournals.org/content/3/6/574.full?sid=3ecbb451-36d9-4d35-936a-e48de6016257 .
Learn more about the American Heart Association here:
http://www.heart.org/HEARTORG/
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